Please forgive our mess -
we are rebuilding our website.
Our mission is to promote awareness, education, service and research for those affected by lupus.
Social Justice Issue
Lupus impacts women and minorities disproportionately, which makes the need for a cure both a vital public health concern and a social justice matter.
We are moving from a medical model of service delivery to a social services -or social justice- model. We plan to move forward with programming and service initiatives geared to reach those populations most impacted by lupus in new and innovative ways. With infrastructure improvements such as rebranding, technology upgrades, talent management and capacity building we will be able to move forward by providing cutting-edge support and outreach. We plan to embark on state-wide canvassing with education and awareness programming.
Early lupus detection and treatment is the key to a better health outcome and can usually lessen the progression and severity of the disease. Until there is a cure for lupus, supporting and educating all Pennsylvanians is vital. Lupus affects more than 1.5 million Americans. African Americans, Hispanics/Latinas, Asians and Native Americans are predominately affected by lupus. 9 out of 10 lupus patients are women and 1 in 5 people are children.
Because lupus impacts women and minorities disproportionately, we are making it our responsibility to tip the scales in their favor. We want to saturate our community with education about early detection and signs & symptoms while supporting those who are currently managing their disease. Women, and especially minority women, are entitled to better information and more, readily available support.
Join Chairmen Tom Miller and Honorary Chair Jay Caufield
on July 10th at The Club at Nevillewood
Our volunteer Patient Advocates are lead by our Patient Services Director and provide support and outreach across Pennsylvania. They attend health fairs, community events, schools and corporations rolling out our lupus awareness message. We also support patients and their loved ones over the phone and in-person as they manage their disease. We address lupus as a vital public health issue and a health equity issue (because 90% of those affected are women and lupus affects minorities disproportionately). We are passionate about educating individuals, groups and the community at-large about the signs and symptoms of lupus. We want as many people as possible to know about lupus so that it becomes better understood and more talked about.
Lupus is chronically misdiagnosed and early intervention can be key when managing the disease. It is estimated that over 66.000 PA residents have lupus, but due to what can often times be years of misdiagnosis and lack of recognition, we imagine that number to be much higher. Please help us to help our community to tip the scales of social justice by supporting our state-wide awareness movement serving women and minorities.
Please contact the office to see how you can get involved!